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024 7 _a10.1163/ej.9789004155596.i-329
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082 0 4 _a344.04/196
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049 _aMAIN
245 0 0 _aGenomics and public health :
_blegal and socio-ethical perspectives /
_cedited by Bartha Maria Knoppers.
260 _aLeiden ;
_aBoston :
_bMartinus Nijhoff,
_c©2007.
300 _a1 online resource (xi, 329 pages) :
_billustrations
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
504 _aIncludes bibliographical references.
505 0 _apt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin.
588 0 _aPrint version record.
520 _aPolicy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state.
590 _aeBooks on EBSCOhost
_bEBSCO eBook Subscription Academic Collection - Worldwide
650 0 _aGenetic screening
_xLaw and legislation.
_9225353
650 0 _aGenomics.
_9100269
650 0 _aGenomics
_xMoral and ethical aspects.
_9225354
650 0 _aPublic health.
_96466
650 0 _aHuman rights.
650 1 2 _aGenomics
_xethics
_9870653
650 2 _aGenomics
_9100269
650 2 _aPublic Health
_96466
650 2 2 _aHuman Rights
650 2 2 _aMass Screening
_91191010
650 2 2 _aPublic Health
_xethics
_9898666
650 6 _aDépistage génétique
_xDroit.
_91405907
650 6 _aGénomique.
_9910718
650 6 _aGénomique
_xAspect moral.
_9870656
650 6 _aSanté publique.
650 6 _aDroits de l'homme (Droit international)
_9865142
650 7 _apublic health.
_2aat
_96466
650 7 _aLAW
_xMedical Law & Legislation.
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650 7 _aGenomics
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650 7 _aGenetic screening
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650 7 _aGenomics.
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_0(OCoLC)fst00940228
_9100269
650 7 _aPublic health.
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_0(OCoLC)fst01082238
_96466
655 4 _aElectronic books.
655 7 _aElectronic books.
_2gtlm
700 1 _aKnoppers, Bartha Maria.
_9158191
776 0 8 _iPrint version:
_tGenomics and public health.
_dLeiden ; Boston : Martinus Nijhoff, ©2007
_z9789004155596
_z9004155597
_w(DLC) 2007271360
_w(OCoLC)82673721
856 4 0 _uhttps://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=232358
938 _aEBL - Ebook Library
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