000 | 06550cam a2200853 a 4500 | ||
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001 | ocn238518855 | ||
003 | OCoLC | ||
005 | 20220712223805.0 | ||
006 | m o d | ||
007 | cr cnu---unuuu | ||
008 | 080805s2006 ne a ob 000 0 eng d | ||
040 |
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_a10.1163/ej.9789004155596.i-329 _2doi |
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_aK3611.G46 _bG484 2007eb |
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060 | 4 | _a2007 C-815 | |
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_a344.04/196 _222 |
049 | _aMAIN | ||
245 | 0 | 0 |
_aGenomics and public health : _blegal and socio-ethical perspectives / _cedited by Bartha Maria Knoppers. |
260 |
_aLeiden ; _aBoston : _bMartinus Nijhoff, _c©2007. |
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300 |
_a1 online resource (xi, 329 pages) : _billustrations |
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336 |
_atext _btxt _2rdacontent |
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337 |
_acomputer _bc _2rdamedia |
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338 |
_aonline resource _bcr _2rdacarrier |
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504 | _aIncludes bibliographical references. | ||
505 | 0 | _apt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics -- the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet [and others] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin. | |
588 | 0 | _aPrint version record. | |
520 | _aPolicy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state. | ||
590 |
_aeBooks on EBSCOhost _bEBSCO eBook Subscription Academic Collection - Worldwide |
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650 | 0 |
_aGenetic screening _xLaw and legislation. _9225353 |
|
650 | 0 |
_aGenomics. _9100269 |
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650 | 0 |
_aGenomics _xMoral and ethical aspects. _9225354 |
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650 | 0 |
_aPublic health. _96466 |
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650 | 0 | _aHuman rights. | |
650 | 1 | 2 |
_aGenomics _xethics _9870653 |
650 | 2 |
_aGenomics _9100269 |
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_aPublic Health _96466 |
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650 | 2 | 2 | _aHuman Rights |
650 | 2 | 2 |
_aMass Screening _91191010 |
650 | 2 | 2 |
_aPublic Health _xethics _9898666 |
650 | 6 |
_aDépistage génétique _xDroit. _91405907 |
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650 | 6 |
_aGénomique. _9910718 |
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650 | 6 |
_aGénomique _xAspect moral. _9870656 |
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650 | 6 | _aSanté publique. | |
650 | 6 |
_aDroits de l'homme (Droit international) _9865142 |
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650 | 7 |
_apublic health. _2aat _96466 |
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_aLAW _xMedical Law & Legislation. _2bisacsh _9881011 |
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_aGenomics _xMoral and ethical aspects. _2fast _0(OCoLC)fst01983796 _9225354 |
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_aGenetic screening _xLaw and legislation. _2fast _0(OCoLC)fst00940095 _9225353 |
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650 | 7 |
_aGenomics. _2fast _0(OCoLC)fst00940228 _9100269 |
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_aPublic health. _2fast _0(OCoLC)fst01082238 _96466 |
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655 | 4 | _aElectronic books. | |
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_aElectronic books. _2gtlm |
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700 | 1 |
_aKnoppers, Bartha Maria. _9158191 |
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_iPrint version: _tGenomics and public health. _dLeiden ; Boston : Martinus Nijhoff, ©2007 _z9789004155596 _z9004155597 _w(DLC) 2007271360 _w(OCoLC)82673721 |
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