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008 151002s2015 dcuac obt 100 0 eng
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035 _a(OCoLC)928987791
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042 _apcc
043 _an-us---
050 4 _aRC281.C4
060 0 0 _a2015 K-965
060 1 0 _aQZ 275
072 7 _aMED
_x033000
_2bisacsh
082 0 4 _a618.92994
_223
049 _aMAIN
100 1 _aNass, Sharyl J.,
_erapporteur.
_9119933
245 1 0 _aComprehensive cancer care for children and their families :
_bsummary of a joint workshop by the Institute of Medicine and the American Cancer Society /
_cSharyl J. Nass and Margie Patlak, rapporteurs ; National Cancer Policy Forum, Board on Health Care Services, Institute of Medicine, the National Academies of Sciences, Engineering, and Medicine.
264 1 _aWashington, D.C. :
_bNational Academies Press,
_c[2015]
300 _a1 online resource (1 PDF file (xx, 106 pages)) :
_billustrations, portraits
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
500 _aTitle from PDF title page.
504 _aIncludes bibliographical references.
520 3 _aChildhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop.
536 _aThis activity was co-sponsored by the American Cancer Society. The project was also supported by Contract No. HHSN261200900003C and Contract No. HHSN263201200074I (Task Order No. HHSN26300052) between the National Academy of Sciences and the Centers for Disease Control and Prevention and the National Cancer Institute/National Institutes of Health, respectively, and by the American Association for Cancer Research, American Society for Radiation Oncology, American Society of Clinical Oncology, American Society of Hematology, Association of American Cancer Institutes, AstraZeneca, Bristol-Myers Squibb, C-Change, Cancer Support Community, CEO Roundtable on Cancer, EMD Serono, Helsinn Healthcare SA, LIVESTRONG Foundation, National Comprehensive Cancer Network, Novartis Oncology, Oncology Nursing Society, and Sanofi Oncology.
588 0 _aVersion viewed November 6, 2015.
505 0 _aOverview Of The Current Landscape In Pediatric Cancer Research And Treatment -- Trends and Challenges in Developing Drugs for Pediatric Cancer -- Integrating Pediatric Palliative Care: Ensuring Child And Family Well-Being Along The Continuum -- Generalist Plus Specialist Palliative Care -- End-of-Life Care and Bereavement Care -- The Role of Communication -- Policy Opportunities to Improve Pediatric Palliative Care Across the Care Continuum -- Psychosocial Challenges And Opportunities -- Psychosocial Needs for Pediatric Patients -- Psychosocial Needs of Families -- Predicting and Screening for Distress -- Parental Interventions to Alleviate Distress -- Building Capacity for Psychosocial Care -- Psychosocial Care Standards -- Research Needs -- Detecting Pain And Suffering -- PROs in Clinical Research -- PROs in Clinical Care -- The State of the Science for Pediatric PROs -- Parents as Proxies -- Long-Term Effects -- Predicting Complications -- Screening for and Preventing Complications -- Improving Care Transitions -- Transitioning Off Treatment to Follow-Up Care -- Transitioning to Adult Follow-Up Care -- Supporting Providers -- Supporting Patients -- Models of Survivorship Care -- Research Needs -- Pediatric Oncology Data Collection And Registries -- Integrating Databases for Research -- Pediatric Proton Consortium Registry -- Measuring Poverty and Its Impacts -- Wrap-Up.
590 _aeBooks on EBSCOhost
_bEBSCO eBook Subscription Academic Collection - Worldwide
650 0 _aCancer in children
_xTreatment
_vCongresses.
_9899641
650 0 _aCancer in children
_xPatients
_xCare
_vCongresses.
_91085832
650 0 _aTumors
_xTreatment
_zUnited States
_vCongresses.
_91085833
650 0 _aTumors
_xComplications
_zUnited States
_vCongresses.
_91085834
650 0 _aPalliative treatment
_zUnited States
_vCongresses.
_91085835
650 0 _aTerminal care
_zUnited States
_vCongresses.
_91085836
650 0 _aChildren.
650 0 _aPalliative treatment.
_970021
650 1 2 _aChild
650 1 2 _aNeoplasms
_xtherapy
_9853325
650 2 2 _aPalliative Care
_9466371
650 6 _aCancer chez l'enfant
_xTraitement
_vCongrès.
_9899648
650 6 _aCancer chez l'enfant
_xPatients
_xSoins
_vCongrès.
_91085837
650 6 _aTumeurs
_xTraitement
_zÉtats-Unis
_vCongrès.
_91085838
650 6 _aTumeurs
_xComplications et séquelles
_zÉtats-Unis
_vCongrès.
_91085839
650 6 _aSoins palliatifs
_zÉtats-Unis
_vCongrès.
_91085840
650 6 _aSoins en phase terminale
_zÉtats-Unis
_vCongrès.
_91085841
650 6 _aEnfants.
650 6 _aSoins palliatifs.
_9887240
650 7 _achildren (people by age group)
_2aat
650 7 _aMEDICAL
_xGynecology & Obstetrics.
_2bisacsh
_9858560
650 7 _aCancer in children
_xTreatment.
_2fast
_0(OCoLC)fst00845587
_9899652
650 7 _aPalliative treatment.
_2fast
_0(OCoLC)fst01051719
_970021
650 7 _aTerminal care.
_2fast
_0(OCoLC)fst01147835
_9108797
650 7 _aTumors
_xTreatment.
_2fast
_0(OCoLC)fst01158791
_9202171
651 7 _aUnited States.
_2fast
_0(OCoLC)fst01204155
655 0 _aElectronic books.
655 2 _aCongress
_9848640
655 4 _aElectronic books.
655 7 _aConference papers and proceedings.
_2fast
_0(OCoLC)fst01423772
655 7 _aConference papers and proceedings.
_2lcgft
655 7 _aActes de congrès.
_2rvmgf
_9848577
700 1 _aPatlak, Margie,
_erapporteur.
_9119934
710 2 _aNational Cancer Policy Forum (U.S.),
_eissuing body,
_eorganizer.
711 2 _aComprehensive Cancer Care for Children and Their Families (Workshop)
_d(2015 :
_cWashington, D.C.)
_91085842
776 0 8 _iPrint version:
_aNass, Sharyl J.
_tComprehensive cancer care for children and their families : summary of a joint workshop by the Institute of Medicine and the American Cancer Society.
_dWashington, District of Columbia : The National Academies Press, ©2015
_hxx, 106 pages
_z9780309374415
856 4 0 _uhttps://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=1029483
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