Consumer voice and choice in long-term care / edited by Suzanne R. Kunkel and Valerie Wellin.

Includes some papers presented at a conference organized by the Scripps Gerontology Center.

Includes bibliographical references and index.

Older consumers and decision making: a look at family caregivers and care receivers / Carol J. Whitlatch -- Choice and the institutionalized elderly / Susan C. Reinhard, Sandra Howell White, and Winifred Quinn -- History of and lessons from the cash and counseling demonstration and evaluation / Kevin J. Mahoney and Kristin Stmone -- A description of racial/ethnic differences regarding consumer-directed community long-term care / Mark Sciegaj -- Case managers' perspectives on consumer direction / Suzanne R. Kunkel and Ian M. Nelson -- Integrating occupational health and safety into the United States' personal assistance services workforce research agenda / Teresa Scherzer, Susan Chapman, and Robert Newcomer -- Backs to the future: the challenge of individual long-term care planning / Kathryn B. McGrew -- Capturing the voice of consumers in long-term care: if you ask them they will tell / Robert A. Applebaum, Gwen C. Uman, and Jane K. Straker -- Caregivers as consumers: perspectives on quality / Suzanne R. Kunkel, Kathryn B. McGrew, Robert A. Applebaum, and Shawn L. Davis -- The consumer/provider relationship as care quality mediator / Barbara Bowers, Sarah L. Esmond, Sally Norton, and Elizabeth Holloway -- Resident satisfaction with independent living facilities in continuing care retirement communities / Farida K. Ejaz, Dorothy Schur, and Kathleen Fox -- Common or uncommon agendas: consumer direction in the aging and disability movements / Robyn I. Stone -- Scrutinizing familial care in consumer-directed long-term care programs: implications for theory and research / Chris Wellin -- Gifts or poison? the cultural context of using public funds to pay family caregivers / Lisa Groger -- Response to quality: differing definitions / Elias S. Cohen -- When consumer direction fails: assigning legal and ethical responsibility in worst-case situations / Marshall B. Kapp.

Print version record.

There is no other book that provides a comprehensive look at the research, practice, and ideological aspects of consumer voice and choice in long term care. Opportunity for consumers to provide input about their services within the traditional system is a defining element of consumer voice. Hearing from consumers about the quality of, and their satisfaction with, their services has become an essential component of quality management in many sectors of long-term care. Providing service delivery options so that long-term care consumers can truly have choice has required more fundamental changes.

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