TY  - BOOK
AU  - Ashworth,Rosalie
AU  - Fyvel,Sue
AU  - Gilder,Willy
AU  - Hay,Stuart
AU  - Henry,Winnie
AU  - Hill,Alyson
AU  - Houston,Agnes
AU  - Lamont,Myra
AU  - Maddocks,Chris
AU  - Qureshi,Masood
AU  - Robertson,Martin
AU  - Ross,David
AU  - Wilson,Fred S.
TI  - Challenging Assumptions Around Dementia: User-led Research and Untold Stories
SN  - 978-3-031-27223-3
PY  - 2023///
CY  - Cham
PB  - Springer Nature
KW  - Clinical psychology
KW  - bicssc
KW  - Geriatric medicine
KW  - Health psychology
KW  - Neurosciences
KW  - Psychological methodology
KW  - ageing
KW  - Alzheimer's disease
KW  - biomedicine
KW  - clinical trials
KW  - dementia research
KW  - dementia with Lewy bodies
KW  - ethnography
KW  - Fronto-Temporal Dementia
KW  - gerontology
KW  - interviews
KW  - lived experience
KW  - mental health research
KW  - neuroprogressive conditions
KW  - Parkinson's disease
KW  - participatory methodology
KW  - psychology
KW  - social psychology
KW  - User-led Research
KW  - Vascular dementia
N1  - Open Access
N2  - This open access book explores the expectations surrounding dementia, what it 'looks like' and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer's disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public
UR  - https://library.oapen.org/bitstream/id/4be4472d-f147-4097-b3bb-f495907846d3/978-3-031-27223-3.pdf
UR  - https://library.oapen.org/handle/20.500.12657/76223
ER  -