TY  - BOOK
AU  - Grob,Rachel
TI  - Testing baby: the transformation of newborn screening, parenting, and policy making 
T2  - Critical issues in health and medicine
SN  - 9780813552026
AV  - RJ255.5 .G76 2011eb
U1  - 362.198/9201 22
PY  - 2011///]
CY  - New Brunswick, NJ
PB  - Rutgers University Press
KW  - Umschulungswerkstätten für Siedler und Auswanderer
KW  - Bitterfeld
KW  - gnd
KW  - Newborn infants
KW  - Diseases
KW  - Diagnosis
KW  - Medical screening
KW  - Newborn screening
KW  - Parents
KW  - Medical policy
KW  - Neonatal Screening
KW  - Infant, Newborn
KW  - Health Policy
KW  - Nouveau-nés
KW  - Maladies
KW  - Diagnostic
KW  - Dépistage (Médecine)
KW  - Dépistage néonatal
KW  - Politique sanitaire
KW  - broader terms
KW  - aat
KW  - MEDICAL
KW  - Public Health
KW  - bisacsh
KW  - fast
KW  - Neugeborenenkrankheit
KW  - Reihenuntersuchung
KW  - Gesundheitspolitik
KW  - Eltern
KW  - Electronic books
N1  - Includes bibliographical references and index; Saving babies, changing lives -- Diagnostic odysseys, old and new : how newborn screening transforms parents, encounters with disease -- Specters in the room : parenting in the shadow of cystic fibrosis -- Encounters with expertise : parents and health care professionals -- A house on fire : how private experiences ignite public voices -- Brave new worlds : can they be seen in a drop of blood?; Electronic reproduction; [Place of publication not identified]; HathiTrust Digital Library; 2011
N2  - Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives
UR  - https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=433667
ER  -