TY - BOOK AU - Satgé,Daniel AU - Merrick,Joav TI - Cancer in children and adults with intellectual disabilities: current research aspects T2 - Disability studies SN - 9781611221879 AV - RC262 .C29112 2011eb U1 - 616.99/400874 22 PY - 2011/// CY - New York PB - Nova Science KW - Cancer KW - People with mental disabilities KW - Diseases KW - Developmental Disabilities KW - complications KW - Neoplasms KW - Persons with Mental Disabilities KW - psychology KW - Personnes ayant une déficience intellectuelle KW - Maladies KW - MEDICAL KW - Oncology KW - bisacsh KW - HEALTH & FITNESS KW - fast KW - Electronic books N1 - Includes bibliographical references and index; CANCER IN CHILDREN AND ADULTS WITH INTELLECTUAL DISABILITIES: CURRENT RESEARCH ASPECTS; CANCER IN CHILDREN AND ADULTS WITH INTELLECTUAL DISABILITIES: CURRENT RESEARCH ASPECTS ; Contents ; Foreword ; References; Introduction; References ; Section One: Adapted Care ; Communication, Access and Comfort; Introduction ; Demographic Change and Incidence of Cancer ; Health Policy, Accesss to Health Care and Lifestyle Issues; Communication, Participation and Comfort ; Conclusion; Acknowledgments ; References ; User Participation is Important for the Creation of Adapted Cancer Information Material; Introduction Our Project ; What We Developed ; Discussion ; How to create adapted literature ; Adapted photographs ; Simple text ; Simple content ; Readability ; Conclusion ; Acknowledgments ; References ; Disclosure and Information for People with Intellectual Disabilities Who Have Cancer; Introduction ; Truth-Telling ; The general population; Persons with Intellectual Disability; How much can people with intellectual disabilities understand?; 'Ignorance is bliss' ; Information, Capacity and Consent ; Breaking Bad News; Conclusions ; References; Assessing Pain in Children with Intellectual Disability Introduction; Pain Assessment as a Foundation for Pain Management ; Accounting for biased observers ; Evaluating psychometrics of assessment tools ; Pain Assessment Methods; Early research regarding pain in people with ID ; Pain assessment tools designed for typical children ; Multidimensional tools ; Self-report pain tools ; Observational tools designed for children with ID ; The paediatric pain profile (ppp) ; The Non-communicating Children's Pain Checklists (NCCPC's) ; Summary ; Putting Research into Practice; Acknowledgments; Intraoperative consideration for patients with cancerPost-Operative Consideration ; Conclusions ; References ; Perceptions of Death Among Adults with Intellectual Disability; Introduction; Our Study ; What Did We Find?; Announcing the death of someone close; Absence of tangible signs of death ; Lucidity at the end of life; The concept of death ; Conclusions ; Acknowledgment ; References ; Thinking About Death and Dying ; Introduction ; Our Experience ; What We Found ; Discussion; Conclusion ; Acknowledgments ; References ; Palliative Care to People with Intellectual Disabilities and Cancer UR - https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=367189 ER -