Cancer in children and adults with intellectual disabilities : current research aspects / Daniel Satgé and Joav Merrick, editors.

Includes bibliographical references and index.

Print version record.

CANCER IN CHILDREN AND ADULTS WITH INTELLECTUAL DISABILITIES: CURRENT RESEARCH ASPECTS; CANCER IN CHILDREN AND ADULTS WITH INTELLECTUAL DISABILITIES: CURRENT RESEARCH ASPECTS ; Contents ; Foreword ; References; Introduction; References ; Section One: Adapted Care ; Communication, Access and Comfort; Introduction ; Demographic Change and Incidence of Cancer ; Health Policy, Accesss to Health Care and Lifestyle Issues; Communication, Participation and Comfort ; Conclusion; Acknowledgments ; References ; User Participation is Important for the Creation of Adapted Cancer Information Material.

Introduction Our Project ; What We Developed ; Discussion ; How to create adapted literature ; Adapted photographs ; Simple text ; Simple content ; Readability ; Conclusion ; Acknowledgments ; References ; Disclosure and Information for People with Intellectual Disabilities Who Have Cancer; Introduction ; Truth-Telling ; The general population; Persons with Intellectual Disability; How much can people with intellectual disabilities understand?; 'Ignorance is bliss' ; Information, Capacity and Consent ; Breaking Bad News; Conclusions ; References.

Assessing Pain in Children with Intellectual Disability Introduction; Pain Assessment as a Foundation for Pain Management ; Accounting for biased observers ; Evaluating psychometrics of assessment tools ; Pain Assessment Methods; Early research regarding pain in people with ID ; Pain assessment tools designed for typical children ; Multidimensional tools ; Self-report pain tools ; Observational tools designed for children with ID ; The paediatric pain profile (ppp) ; The Non-communicating Children's Pain Checklists (NCCPC's) ; Summary ; Putting Research into Practice; Acknowledgments.

Intraoperative consideration for patients with cancerPost-Operative Consideration ; Conclusions ; References ; Perceptions of Death Among Adults with Intellectual Disability; Introduction; Our Study ; What Did We Find?; Announcing the death of someone close; Absence of tangible signs of death ; Lucidity at the end of life; The concept of death ; Conclusions ; Acknowledgment ; References ; Thinking About Death and Dying ; Introduction ; Our Experience ; What We Found ; Discussion; Conclusion ; Acknowledgments ; References ; Palliative Care to People with Intellectual Disabilities and Cancer.

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