Follow the Child : Planning and Having the Best End of Life Care for Your Child.

Print version record.

Foreword. Introduction. 1. The Difficult Conversation(s) Part I. 2. The Difficult Conversation(s) Part II -- The Advance Care Plan (ACP). 3. The Last Fortnight . 4. The Last Hours 24-48 . 5. The Hours after Death. 6. Celebration.

A child or young person with a terminal illness needs the best possible end of life care plan. This work will help guide families through the entire process, giving information about available support, what questions you should ask and how to care for your child at home. Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person.

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