MARC details
| 000 -LEADER |
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| fixed length control field |
02955naaaa2200265uu 4500 |
| 001 - CONTROL NUMBER |
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| control field |
https://library.oapen.org/handle/20.500.12657/48383 |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
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| control field |
20220714215145.0 |
| 041 0# - LANGUAGE CODE |
|---|
| Language code of text/sound track or separate title |
English |
| 042 ## - AUTHENTICATION CODE |
|---|
| Authentication code |
dc |
| 072 #7 - SUBJECT CATEGORY CODE |
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| Subject category code |
MB |
| Source |
bicssc |
| 100 1# - MAIN ENTRY--PERSONAL NAME |
|---|
| Personal name |
Wilkinson, Dominic |
| Relator code |
auth |
| 9 (RLIN) |
921681 |
| 245 10 - TITLE STATEMENT |
|---|
| Title |
Chapter 5 In defense of a conditional harm threshold test for paediatric decision-making |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. (IMPRINT) |
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| Place of publication, distribution, etc |
Oxford |
| Name of publisher, distributor, etc |
Hart Publishing |
| Date of publication, distribution, etc |
2019 |
| 300 ## - PHYSICAL DESCRIPTION |
|---|
| Extent |
1 electronic resource (17 p.) |
| 506 0# - RESTRICTIONS ON ACCESS NOTE |
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| Terms governing access |
Open Access |
| Source of term |
star |
| Standardized terminology for access restriction |
Unrestricted online access |
| 520 ## - SUMMARY, ETC. |
|---|
| Summary, etc |
The case of Charlie Gard raises a number of serious ethical questions, including how a child's best interests should be assessed, the role of parents in decision-making for a child, the appropriateness of trying untested experimental treatment in a serious ill child, and the allocation of limited healthcare resources. Elsewhere, I have reviewed these questions in some detail and explored the implications for future disputes over medical treatment for children.1 In this chapter, I will focus on one of the questions that arose in the Gard case and was also raised in the subsequent case of Alfie Evans. If there is disagreement between parents and health professionals about treatment for a child, should courts overrule parents on the basis of an assessment of what would be best for the child, or only if what the parents propose would be harmful for the child? I will largely focus on the ethical question (and leave the more specific legal questions to other commentators in this volume).2 I outline the ethical case for using a harm threshold test rather than a best interests test, identifying a set of cases where these tests may yield different decisions. I respond to a series of counterarguments against the use of harm thresholds. In the last part of the chapter, I propose a compromise, a conditional harm threshold test that would apply only if there is a question of preventing parents from pursuing treatment that other health professionals are offering to provide. I explore the implications of this test for a set of challenging cases similar to the Gard/Evans cases, setting out two different alternatives for evaluating the harm of prolonging life in children with absent consciousness. |
| 536 ## - FUNDING INFORMATION NOTE |
|---|
| Text of note |
Wellcome Trust |
| 540 ## - TERMS GOVERNING USE AND REPRODUCTION NOTE |
|---|
| Terms governing use and reproduction |
Creative Commons |
| -- |
https://creativecommons.org/licenses/by/4.0/ |
| -- |
cc |
| -- |
https://creativecommons.org/licenses/by/4.0/ |
| 546 ## - LANGUAGE NOTE |
|---|
| Language note |
English |
| 650 #7 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name as entry element |
Medicine: general issues |
| Source of heading or term |
bicssc |
| 9 (RLIN) |
954083 |
| 653 ## - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
ethical decisions; child; parents; Gard case; Alfie Evans |
| 773 10 - HOST ITEM ENTRY |
|---|
| Title |
Parental Rights, Best Interests and Significant Harms |
| Control subfield |
nnaa |
| 856 40 - ELECTRONIC LOCATION AND ACCESS |
|---|
| Host name |
www.oapen.org |
| Uniform Resource Identifier |
<a href="https://library.oapen.org/bitstream/id/8fb0fd54-b852-4e68-a572-b77b13fbf75a/Bookshelf_NBK556970.pdf">https://library.oapen.org/bitstream/id/8fb0fd54-b852-4e68-a572-b77b13fbf75a/Bookshelf_NBK556970.pdf</a> |
| -- |
0 |
| Public note |
OAPEN Library: download the publication |
| 856 40 - ELECTRONIC LOCATION AND ACCESS |
|---|
| Host name |
www.oapen.org |
| Uniform Resource Identifier |
<a href="https://library.oapen.org/handle/20.500.12657/48383">https://library.oapen.org/handle/20.500.12657/48383</a> |
| -- |
0 |
| Public note |
OAPEN Library: description of the publication |
